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COMPLETEDNCT03410290

Journey of Patients With Vasculitis From First Symptom to Diagnosis

This study seeks to understand the journey that patients eventually are diagnosed with vasculitis experience in the period prior to their formal diagnosis by a healthcare provider. Data elements of in...

Lead sponsor: University of Pennsylvania•1 U.S. locations•View source on ClinicalTrials.gov

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Sponsors

Lead Sponsor

University of Pennsylvania

Age

All ages

Sex

ALL

Healthy Volunteers

No

Inclusion Criteria

•1. Diagnosis of a systemic vasculitis: The V-PPRN includes patients with self-reported Behçet's disease, central nervous system vasculitis, cryoglobulinemic vasculitis, eosinophilic granulomatosis with polyangiitis (Churg-Strauss Syndrome, CSS), giant cell (temporal) arteritis (GCA), granulomatosis with polyangiitis (Wegener's, GPA), IgA vasculitis (Henoch-Schönlein Purpura), microscopic polyangiitis (MPA), polyarteritis nodosa (PAN), Takayasu's arteritis (TAK), and urticarial vasculitis.
•2. Language requirements: questionnaire will be in English only

Exclusion Criteria

•1. Inability to provide informed consent and complete survey in English
•2. Patients with a diagnosis of "other" type of vasculitis
•3. Patients with a "missing" diagnosis -

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Data from ClinicalTrials.govLast updated on ClinicalTrials.gov: June 6, 2018Terms

Trial snapshot

StatusCOMPLETED

Phase—

Enrollment456

Start dateJan 2018

Last updatedJun 6, 2018

Condition

Vasculitis Systemic Vasculitis Behcet's Disease CNS Vasculitis Cryoglobulinemic Vasculitis+11 more

Locations shown

University of South Florida

Tampa, Florida

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Data Source & Attribution

This clinical trial information is sourced from ClinicalTrials.gov, a service of the U.S. National Institutes of Health.

ClinicalTrials.gov last update: June 6, 2018Data synced to Clareo: June 28, 2026

Modifications: This data has been reformatted for display purposes. Eligibility criteria have been parsed into inclusion/exclusion sections. Location data has been geocoded to enable distance-based search. For the authoritative and most current information, please visit ClinicalTrials.gov.

Neither the United States Government nor Clareo Health make any warranties regarding the data. Check ClinicalTrials.gov frequently for updates.

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