FARD (RaDiCo Cohort) (RaDiCo-FARD)

Inclusion Criteria

• •adults or children with a confirmed diagnosis of one of the 9 following rare skin disease: Inherited epidermolysis bullosa, Ichthyosis, Ectodermal dysplasia, Incontinetia Pigmenti, Neurofibromatosis type 1, Albinism, Pemphigus, Mucous membrane pemphigoid or Palmoplantar keratoderma.
• •prevalent or incident and followed in one the reference/competence centers of the FIMARAD healthcare network,
• •able to understand a survey (for child, survey should be understood by parents),
• •having given their signed consent to participate to the cohort RaDiCo-FARD (parents' consent for child).
• •Patients, for whom regular care follow-up is not feasible with the FIMARAD healthcare network sites,
• •Unconfirmed diagnosis (according to criteria for each disease),
• •Patients (and/or parents) not able to understand a survey
• •Patients (and/or parents) not having given their signed consent to participate to the study