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Investigating Perspectives of Patients With Genodermatosis and Healthcare Professionals on Reproductive Counselling
The goal of this observational study is to understand the perspectives and needs of patients with genodermatoses and their partners who wish to have children, regarding their decision-making process and their consideration of reproductive options. Additionally, the investigators aim to investigate the level of knowledge and perspectives of healthcare professionals (such as clinical geneticists, dermatologists and other clinicians involved), and want to explore to what extent patients and their partners are well informed about these reproductive options. To achieve this, the investigators will conduct individual semi-structured qualitative interviews with participants affected by genodermatoses (and their partners) and with healthcare professionals.
Age
All ages
Sex
ALL
Healthy Volunteers
No
Maastricht University Medical Center
Maastricht, Limburg, Netherlands
Start Date
January 1, 2024
Primary Completion Date
August 31, 2025
Completion Date
December 31, 2025
Last Updated
May 18, 2025
25
ESTIMATED participants
Qualitative interview
OTHER
Lead Sponsor
Maastricht University Medical Center
NCT07444697
NCT06819592
Data Source & Attribution
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