Genetic Frontotemporal Dementia Initiative for Neurodevelopment

Inclusion Criteria

• •1. Written informed consent must be obtained and documented (from the participant and their substitute decision maker). This can be obtained in person or remotely.
• •2. Youths between the ages of 9 and 16 inclusive at time of enrollment, followed until age 17.
• •3. Youths must have a 1st or 2nd degree biological relative who has participated (past or present) in the Genetic Frontotemporal Dementia Initiative (GENFI) study or with genetic FTD (i.e. a known mutation in biological parent or grandparent).
• •4. Parent(s)/guardian deem appropriate to participate.
• •5. Must have a study partner who can participate as required in the protocol (provide corroborative information). Study partner must have regular contact with the participant and must be parent/guardian of this participant.
• •6. Must have age-appropriate awareness that FTD runs in their family as determined by local PI.