National Institute of Neurological Disorders and Stroke (NINDS)
National Center for Advancing Translational Sciences (NCATS)
National Institutes of Health (NIH)
The study will consent patients with ALS or related disorders that are receiving care at a clinical center in the CReATe consortium that uses Epic as its electronic health record (EHR) system. The study aims to systematically gather a clinical dataset through the EHR using a standardized approach to characterize the natural history of ALS and related diseases.
Age
18–any
Sex
ALL
Healthy volunteers
Not accepted
You may be eligible if
Diagnosis of ALS or a related disorder (e.g. primary lateral sclerosis, progressive muscular atrophy).
Receiving care at a clinical center that uses Epic as its EHR.
Able and willing to provide informed consent (or informed consent obtainable from a designated proxy).
You may not be if
Inability to understand English and/or Spanish
Clareo Health | Clinical Procedures to Support Research in ALS
