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Clinical Procedures to Support Research in ALS (CAPTURE-ALS)
The purpose of the Clinical Procedures To Support Research (CAPTURE) study is to utilize information collected in the medical record to learn more about a disease called amyotrophic lateral sclerosis (ALS) and related disorders.
The study will consent patients with ALS or related disorders that are receiving care at a clinical center in the CReATe consortium that uses Epic as its electronic health record (EHR) system. The study aims to systematically gather a clinical dataset through the EHR using a standardized approach to characterize the natural history of ALS and related diseases.
Age
18 - No limit years
Sex
ALL
Healthy Volunteers
No
University of California, Irvine
Irvine, California, United States
Stanford University
Palo Alto, California, United States
California Pacific Medical Center
San Francisco, California, United States
University of Miami
Miami, Florida, United States
University of Kansas Medical Center
Kansas City, Kansas, United States
Hennepin County Medical Center
Minneapolis, Minnesota, United States
Columbia University
New York, New York, United States
Duke University
Durham, North Carolina, United States
Wake Forest University
Winston-Salem, North Carolina, United States
Providence Health & Services
Portland, Oregon, United States
Start Date
February 15, 2018
Primary Completion Date
June 1, 2026
Completion Date
June 1, 2027
Last Updated
September 19, 2025
1,200
ESTIMATED participants
Lead Sponsor
University of Miami
Collaborators
NCT07322003
NCT05104710
NCT07357428
Data Source & Attribution
This clinical trial information is sourced from ClinicalTrials.gov, a service of the U.S. National Institutes of Health.
Modifications: This data has been reformatted for display purposes. Eligibility criteria have been parsed into inclusion/exclusion sections. Location data has been geocoded to enable distance-based search. For the authoritative and most current information, please visit ClinicalTrials.gov.
Neither the United States Government nor Clareo Health make any warranties regarding the data. Check ClinicalTrials.gov frequently for updates.
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