Compassionate Communication and Advance Care Planning to Improve End of Life Care in Treatment of Hematological Disease (ACT)

Inclusion Criteria

• •Patients must:
• •Be at least 18 years of age
• •Have a diagnosis of one of the following:
• •High-risk myelodysplastic syndrome (MDS) or MDS with overlap of myeloproliferative neoplasms (high-risk MDS/MPN),
• •Acute myeloid leukemia(AML): Age≥80 or in palliative treatment or relapse
• •Lymphoma: Age≥80 or relapse or refractory or palliative treatment
• •Multiple myeloma(MM): Age≥80 or relapsed or refractory
• •Have limited treatment options. Provide informed consent. Have sufficient Danish skills to complete intervention sessions and data collection
• •An informal caregiver is identified by the patient as the primary provider of informal physical, practical or emotional support and must:
• •Be at least 18 years of age
• •Be able to accompany patients to intervention appointments
• •Provide informed consent
• •Have sufficient Danish skills to complete intervention sessions and data collection
• •Physicians:
• •specialized in hematology
• •treating patients with High risk myelodysplastic syndrome, acute myeloid leukemia, lymphoma, or multiple myeloma
• •work at the same department for the entire time of intervention.
• •Nurses:
• •treating patients with High-risk myelodysplastic syndrome, acute myeloid leukemia, lymphoma, or multiple myeloma
• •work at the same department for the entire time of intervention.