Improving Care of Prader-Willi Syndrome : Evaluation of a New Care Program Combining Adapted Physical Activity, Nutrition and Therapeutic Education

Main objective : Evaluate the effectiveness at 6 months of an intensified and individualised care programme combining theoretical and practical therapeutic education workshops on adapted physical activity, nutrition and eating behaviour (i.e. intervention) during hospitalisation, compared to usual care (i.e. control). The assessment will be done by comparing the proportion of patients stabilizing or decreasing their BMI at 6 months after the end of the stay (M7) in the 2 groups (intervention/control). Secondary objectives: During hospitalization: To evaluate, compared to the usual care, the impact of the intervention on : 1. The evolution of physical capacities, 2. The evolution of metabolic criteria and metabolic and cardio-respiratory risk factors, 3. The evolution of eating behaviour, 4. Adherence to the program during hospitalization. At 3 and 6 months after hospitalization : Evaluate the impact of the intervention on : 1. The evolution of weekly physical activity at home, 2. The evolution of eating behaviour at home, 3. Reaching the personalized objective set for the inter-stay. At 6 months after hospitalization: Evaluate, in comparison with the usual management, the impact of the intervention on the evolution of metabolic criteria and metabolic and cardio-respiratory risk factors during a consultation at the hospital in their reference center.