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COMPLETEDNCT01353677

Feasibility of Collecting Quality of Life Data in Collaboration With the Stem Cell Therapeutic Outcomes Database

This is a multi-institution, non-randomized, prospective pilot study to evaluate the feasibility of collecting quality of life (QOL) data on a large cohort of pediatric and adult allogeneic Hematopoie...

Lead sponsor: Center for International Blood and Marrow Transplant Research•7 U.S. locations•View source on ClinicalTrials.gov

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Sponsors

Lead Sponsor

Center for International Blood and Marrow Transplant Research

Collaborators

Medical College of Wisconsin

QOL data will be collected at baseline (pre-transplant), 100 days, 6 months, and 12 months post transplant. The transplant center will consent the patient and administer the baseline QOL surveys. The transplants center will then submit the competed baseline data and patient contact information to the Center for International Blood and Marrow Transplant Research (CIBMTR). The remaining surveys will be administered to the patient from the CIBMTR via paper surveys mailed to the patient.

Age

2 - No limit years

Sex

ALL

Healthy Volunteers

No

Inclusion Criteria

•1. Adult (≥ 18 years), or pediatric (≥ 2 years and \< 18 years) allogeneic HCT recipient (related, unrelated, or CBU) at participating pilot study transplant centers.
•2. Signed informed consent form from adult patient or parent/guardian of pediatric patient.
•3. Patient must have a valid mailing address within the United States to receive QOL surveys.
•4. Ability to speak and read English.
•5. Patients with access to a telephone.

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Data from ClinicalTrials.govLast updated on ClinicalTrials.gov: July 25, 2017Terms

Trial snapshot

StatusCOMPLETED

Phase—

Enrollment390

Start dateJul 2011

Last updatedJul 25, 2017

Condition

Hematopoietic Stem Cell Transplantation

Locations shown

University of Florida

Gainesville, Florida

Mayo Clinic

Rochester, Minnesota

Memorial Sloan-Kettering Cancer Center

New York, New York

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Data Source & Attribution

This clinical trial information is sourced from ClinicalTrials.gov, a service of the U.S. National Institutes of Health.

ClinicalTrials.gov last update: July 25, 2017Data synced to Clareo: May 17, 2026

Modifications: This data has been reformatted for display purposes. Eligibility criteria have been parsed into inclusion/exclusion sections. Location data has been geocoded to enable distance-based search. For the authoritative and most current information, please visit ClinicalTrials.gov.

Neither the United States Government nor Clareo Health make any warranties regarding the data. Check ClinicalTrials.gov frequently for updates.

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