Saves the questions and what to expect into your notes, next to the visit they belong to.
Keep this study
Lead
Boston Children's Hospital
With
Patient-Centered Outcomes Research Institute
Age
Any age
Sex
ALL
Healthy volunteers
Not accepted
You may be eligible if
ICD-10-CM or SNOMED-CT diagnosis code for SLE
Completed a pediatric rheumatology outpatient clinical visit at a participating implementation site within 12 months of each data collection timepoint
Diagnosis of childhood-onset Systemic Lupus Erythematosus (cSLE)
Must have had a pediatric rheumatology clinical visit at a participating implementation site within 12 months of each data collection timepoint
Age 12 years or older at enrollment
Individuals at least 18 years of age
Parent or guardian of a child with cSLE who is followed by a care team at a participating site
Individuals at least 18 years of age
Health care team members within a pediatric subspecialty that manages patients with cSLE at a participating site
Diagnosis of childhood-onset Systemic Lupus Erythematosus (cSLE)
Completed a clinical visit in the participating site's outpatient rheumatology clinic within the 12 months prior to enrollment
Age 12 years or older at enrollment
Able to provide verbal assent if below age 18 years of age or verbal consent if age 18 years and older. For minors, verbal parental/guardian permission (informed consent) is required.
Have access to a device with audio or audiovisual conferencing capabilities
Individuals 18 years old or older at enrollment
Parent or guardian of a child with cSLE who is followed by a care team at a participating pediatric rheumatology site and has completed a clinical visit within the 12 months prior to enrollment
Able to provide verbal informed consent prior to the interview
Have access to a device with audio or audiovisual conferencing capabilities
Individuals ages 18 years of age or older at enrollment
Health care team members that are in a pediatric subspecialty clinic that manages patients with cSLE at a participating site
Able to provide verbal informed consent prior to the interview
Have access to a device with audio or audiovisual conferencing capabilities
You may not be if
Unable or without cognitive capacity to participate in an interview, as determined by the investigator(s).
No prospective interview participants will be excluded on the basis of sex, race, ethnicity, or language preference.
Clareo Health | Team-based Implementation of Hypertension Management in Childhood Lupus
