Evaluation of Socio-professional Inclusion for Young Adults Aged 15-25 Living With a Rare Genetic Disability

Inclusion Criteria

• •Current age 15-25 years born between 1997 and 2007
• •Rare genetic disease confirmed by a genetic test, originating in childhood and followed at Necker in the networks of the following disease reference centers:
• •* epilepsy without deficiency ;
• •* genodermatosis ;
• •* constitutional bone diseases ;
• •* craniofacial malformations;
• •* deafness;