Saves the questions and what to expect into your notes, next to the visit they belong to.
Keep this study
Lead
Abramson Cancer Center at Penn Medicine
With
Emory University
Baylor College of Medicine
Fox Chase Cancer Center
National Cancer Institute (NCI)
Dana-Farber Cancer Institute
Ann & Robert H Lurie Children's Hospital of Chicago
Age
18–any
Sex
ALL
Healthy volunteers
Accepted
You may be eligible if
Biological parent of a child enrolled in the ORIGen cohort (AEPI24N1) who has a confirmed P/LP germline variant in a CPG.
18 years of age or older.
Speak and understand English.
You may not be if
Previous genetic testing for the familial variant.
Communication difficulties such as:
* Uncorrected or uncompensated hearing and/or vision impairment. Patients who can successfully use clinical assistance devices are not excluded.
* Uncorrected or uncompensated speech defects. Patients who can successfully use clinical assistance devices are not excluded.
* Uncontrolled psychiatric/mental condition or severe physical, neurological or cognitive deficits rendering individual unable to understand study goals and tasks.
