Research Accelerated by You Lupus Registry

Inclusion Criteria

• •For adults with lupus, the individual who completes the Registry:
• •* is 18 years of age or older
• •* has a self-reported diagnosis of lupus by a physician or health care provider
• •* is willing and able to provide informed consent
• •* is able to read and understand English sufficiently to complete the survey questions
• •* has access to a computer with an internet connection
• •For children under 18 with lupus, the individual who completes the Registry is:
• •18 years of age or older
• •the parent/legal guardian/legally authorized representative of a child under 18 years of age that has a diagnosis of lupus by a physician or health care provider
• •willing and able to provide consent for the child under 18 years of age and to obtain assent from the child between 7-17 years of age
• •able to access a computer with an internet connection
• •able to read and understand English sufficiently to complete the survey questions
• •For adults with lupus unable to provide consent, the individual who completes the Registry is:
• •18 years of age or older
• •the legally authorized representative of an adult 18 or older who is unable to provide consent and has a diagnosis of lupus by a physician or health care provider
• •willing and able to provide consent for the adult with lupus
• •able to access a computer with an internet connection
• •able to read and understand English sufficiently to complete the survey questions