Finding studies
Finding studies
Take this into the appointment.
Saves the questions and what to expect into your notes, next to the visit they belong to.
Joy N Buie, PhD, MSCR, BSN
CONTACT
Daniel McSkimming, PhD
CONTACT
Lead
Lupus Foundation of America
This is a multinational, direct-to-patient registry available to patients in the United States and Canada. The registry will enroll 10,000 people living with lupus who have a diagnosis of: * Systemic Lupus Erythematosus * Lupus Nephritis (Lupus Related Kidney Disease) * Skin-Only Lupus (Cutaneous Lupus) * Skin-Only Lupus With Scarring (Discoid Lupus) * Lupus Caused By Medication(S) (Drug-Induced Lupus) The registry will include questions about demographics, diagnostic journey, signs and symptoms, treatments, impact of lupus on health and quality of life, patient report outcomes and preferences related to clinical trials. The registry will also collect information about fatigue and work productivity.
Age
Any age
Sex
ALL
Healthy volunteers
Not accepted
