About Pricing FAQs Blog

Loading clinical trials...

Your health journey, clearly organized.

Find Clinical Trials →

Legal

Privacy Policy
Terms of Service

© 2026 Clareo Health. All rights reserved.

Back to clinical trial search

RECRUITINGNANCT06809049

Music Intervention for Brain-Heart Disease in Myotonic Dystrophy Type 1 (DM1)

The goal of this interventional study is to demonstrate the feasibility and tolerability of music and movement intervention for children with congenital DM1, while providing indications of its effecti...

Lead sponsor: Hanns Lochmuller•1 locations•View source on ClinicalTrials.gov

Clareo plain-language summary

What this study is about

Generating AI summary...

Clareo turns complex medical information into clear understanding you can use.

Bring this clarity to your next appointment.

Keep all your medical notes and next steps in one place.

Start Free Trial

Sponsors

Lead Sponsor

Hanns Lochmuller

Collaborators

University of Ottawa

Age

6 - 18 years

Sex

ALL

Healthy Volunteers

No

Inclusion Criteria

•Participants between the ages of 6 to 18 with genetically confirmed congenital or infantile-onset myotonic dystrophy type 1 (DM1).
•Participants willing to stay on stable medication from the day of screening to end of study.

Exclusion Criteria

•Insufficient English language skills to complete required assessments and questionnaires.
•Participant is non-verbal.
•Failure to provide signed informed consent by participant or designated decision maker (i.e. parent, legal guardian or power of attorney).
•Failure to provide signed informed consent by parents/caregivers for dyad participation.
•Participant is not a resident of Canada, due to risk of attrition.
•Patients for whom - in the opinion of the investigator - it would not be safe to participate in the study.

Related studies

Brain Structure and Clinical Endpoints in Myotonic Dystrophy Type 2

NCT05854433 · Myotonic Dystrophy Type 2, Myotonic Dystrophy Type 1

Personalized Training for People With Rare Neuromuscular Disorders

NCT06708468 · Neuromuscular Diseases (NMD), Charcot Marie Tooth Disease (CMT), and more

Myotonic Dystrophy Family Registry

NCT02398786 · Myotonic Dystrophy, Congenital Myotonic Dystrophy, and more

Enrolling By InvitationPhase 3

Global Open-Label Extension Study of Del-desiran for the Treatment of DM1

NCT07008469 · Myotonic Dystrophy Type 1, DM1, and more

COMPLETEDPhase 1/2

Study of AOC 1001 in Adult Myotonic Dystrophy Type 1 (DM1) Patients

NCT05027269 · DM1, Myotonic Dystrophy 1, and more

View all related studies →

Data from ClinicalTrials.govLast updated on ClinicalTrials.gov: February 19, 2026Terms

Trial snapshot

StatusRECRUITING

PhaseNA

Enrollment13

Start dateMar 2025

Last updatedFeb 19, 2026

Condition

Myotonic Dystrophy, Congenital Myotonic Dystrophy, Type 1 (DM1)Myotonic Dystrophy Type 1 Myotonic Dystrophy Type 1 (DM1)

Locations shown

Children's Hospital of Eastern Ontario

Ottawa, Ontario

For caregivers

Use Clareo to keep notes, questions, trial details, and next steps organized before and after appointments.

Start free trial →

Data Source & Attribution

This clinical trial information is sourced from ClinicalTrials.gov, a service of the U.S. National Institutes of Health.

ClinicalTrials.gov last update: February 19, 2026Data synced to Clareo: May 10, 2026

Modifications: This data has been reformatted for display purposes. Eligibility criteria have been parsed into inclusion/exclusion sections. Location data has been geocoded to enable distance-based search. For the authoritative and most current information, please visit ClinicalTrials.gov.

Neither the United States Government nor Clareo Health make any warranties regarding the data. Check ClinicalTrials.gov frequently for updates.

View ClinicalTrials.gov Terms and Conditions