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Nemaline Myopathy Clinical Research Network (NM-CTRN) | Clinical Trials | Clareo Health

Not Yet RecruitingNCT06774703

Nemaline Myopathy Clinical Research Network (NM-CTRN)

The goal of this study is to establish a research network to help define the natural disease history and clinical outcome measures for Nemaline Myopathy (NM).

Lead sponsor: Stanford University•5 U.S. locations•View source on ClinicalTrials.gov

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Contacts

Carolina Tesi-Rocha, MD

CONTACT

650-723-0993 ctesiroc@stanford.edu

Sarah Ismail, BSc

CONTACT

650-460-4596 sismail@stanford.edu

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Data from ClinicalTrials.govLast updated on ClinicalTrials.gov: January 14, 2025Terms

Trial snapshot

StatusNOT_YET_RECRUITING

Phase—

Enrollment50

Start dateJan 2025

Last updatedJan 14, 2025

Condition

Nemaline Myopathy

Locations shown

Stanford University/Lucile Packard Children's Hospital

Palo Alto, California

National Institute of Health

Bethesda, Maryland

Boston Children's Hospital

Boston, Massachusetts

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Data Source & Attribution

This clinical trial information is sourced from ClinicalTrials.gov, a service of the U.S. National Institutes of Health.

ClinicalTrials.gov last update: January 14, 2025Data synced to Clareo: May 25, 2026

Modifications: This data has been reformatted for display purposes. Eligibility criteria have been parsed into inclusion/exclusion sections. Location data has been geocoded to enable distance-based search. For the authoritative and most current information, please visit ClinicalTrials.gov.

Neither the United States Government nor Clareo Health make any warranties regarding the data. Check ClinicalTrials.gov frequently for updates.

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