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Longitudinal Data Registry of a Spectrum of Plasma Cell Dyscrasia with Long-term Follow-up
This study aims to identify clinical characteristics, response and clinical outcome of plasma cell dyscrasia (PCD) diagnosed in Zhongshan Hospital, Fudan University from May 2023. In its current version, the registry incorporates historical data (collected from 2007) and is prospectively collecting follow-up data and recording patient outcomes.
PCD is a spectrum of diseases that is being gradually understood in Asia. This study aims to observe and describe the clinical and genetic characteristics of Chinese PCD patients, and to explore the relationship between the characteristics and pathogenesis. It also aims to discover the potential distinct clonal evolution patterns among different subtype of this disease spectrum. This study is a non-interventional real-world, study. Alll registered data are collected from real clinical practice cases. The medical data includes patient demographic, tumor characteristics, laboratory examination, history of treatments, adverse reactions, efficacy results and possible prognostic factors.
Age
19 - 99 years
Sex
ALL
Healthy Volunteers
No
Zhongshan Hospital, Fudan University
Shanghai, Shanghai Municipality, China
Start Date
March 1, 2023
Primary Completion Date
December 31, 2027
Completion Date
December 31, 2028
Last Updated
January 6, 2025
2,000
ESTIMATED participants
Lead Sponsor
Shanghai Zhongshan Hospital
Data Source & Attribution
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