Saves the questions and what to expect into your notes, next to the visit they belong to.
Keep this study
Lead
Ohio State University Comprehensive Cancer Center
With
National Comprehensive Cancer Network
PRIMARY OBJECTIVE:
I. Develop and assess feasibility of a remote electronic symptom monitoring program with a prompted option for palliative care self-referral for patients or caregivers by proxy after diagnosis of a thoracic malignancy.
SECONDARY OBJECTIVE:
I. Evaluate palliative care referral patterns after implementation of a remote electronic symptom monitoring program.
OUTLINE:
Patients and their caregivers use the electronic symptom monitoring program to log symptoms once a week (QW) for 24 weeks. Patients and their caregivers also watch a video and review education materials prior to starting the remote symptom monitoring program.
After completion of study intervention, participants are followed up to 2 years.
Age
18–any
Sex
ALL
Healthy volunteers
Accepted
You may be eligible if
PATIENTS: Age ≥ 18 years
PATIENTS: Diagnosed with any stage (1-4) or type (non-small cell lung cancer, small cell lung cancer, mesothelioma, thymic carcinoma) of thoracic malignancy
PATIENTS: ≥ 2 visits at the Ohio State University Comprehensive Cancer Center (OSUCCC) Thoracic Oncology Clinic
PATIENTS: Study enrollment within 12 weeks of initial Thoracic Medical Oncology appointment
PATIENTS: Ability to understand and willingness to sign an informed consent document (or indicate approval or disapproval by another means)
PATIENTS: Ability to read and understand English
PATIENTS: Access to a device with email or text messaging capability
CAREGIVERS: Age ≥ 18 years
CAREGIVERS: Identified by patient participant as primary caregiver
CAREGIVERS: Corresponding patient participant has consented to participate in the study
CAREGIVERS: Ability to understand and willingness to sign an informed consent document (or indicate approval or disapproval by another means)
CAREGIVERS: Ability to read and understand English
CAREGIVERS: Access to a device with email or text messaging capability
You may not be if
PATIENTS: Patients who have been previously referred to ambulatory palliative care are excluded from participation
PATIENTS: Prisoners are excluded from participation
PATIENTS: Pregnant patients are excluded from participation
PATIENTS: Patients who lack capacity for medical decision-making as determined by their primary oncologist are excluded from participation