Primary Objective -To characterize the long-term outcomes associated with juvenile-onset mycosis fungoides (jMF) and lymphomatoid papulosis (lyp). The study will consider metrics such as 5-year and 10-year overall survival, and overall disease activity.
Secondary objective
-To characterize treatments and associated comorbidities.
Age
18–any
Sex
ALL
Healthy volunteers
Not accepted
You may be eligible if
To be eligible, participants had to be diagnosed with jMF or lyp before age 20. In the case of participants below the age of 18, parents and not the children will be contacted for participation (children are exempt from participation as their parents may answer our study questions).
You may not be if
Participants older than 20 years of age at diagnosis
Clareo Health | Long-term Outcomes Associated With Juvenile-onset Mycosis Fungoides and Lymphomatoid Papulosis
