A Non-Interventional Study of Clinical Characteristics and Mortality of US Patients With Fibrodysplasia Ossificans Progressiva (FOP)

Inclusion Criteria

• •FOP Cohort(s):
• •1. Living with FOP in the United States who have been identified from the IFOPA membership database
• •2. Confirmed FOP diagnosis through IFOPA membership database will be tokenized and linked with HealthVerity's medical claims data, pharmacy claims data, laboratory data and obituary data, as defined in the protocol
• •Comparator Cohort:
• •1. People without FOP living in the U.S. randomly sampled from HealthVerity's closed medical claims data and matched to the FOP population
• •2. Index date are defined as each person's cohort entry date. People may exit and re-enter the cohort, with the period during which they were not in the cohort excluded from the analysis
• •3. The comparator cohort will be matched to the cohort of people with FOP on the following variables: age, sex, insurance type and first index date