Saves the questions and what to expect into your notes, next to the visit they belong to.
Keep this study
Lead
Janssen Research & Development, LLC
Age
3–any
Sex
ALL
Healthy volunteers
Not accepted
You may be eligible if
For Participant Selection:
Participant has any clinically documented sign(s) and/or symptom(s) consistent with an Inherited Retinal Disease (IRD), or asymptomatic with documented retinal changes detected by imaging or electrophysiology
Participant has documented genetic variant(s) (known pathogenic, likely pathogenic, or variants of uncertain significance) in relevant genes for any of the following IRDs: X-Linked Retinitis Pigmentosa (XLRP) and/or Achromatopsia (ACHM)
Participant or legally acceptable representative has provided informed consent (and participant assent, when applicable) in accordance with local requirements
Participant is able to have relevant visual and/or retinal assessments performed
For Caregiver Selection:
Caregiver has consent from the associated participant to participate in the study, or participant assent and consent from their legally acceptable representative
Male or female aged greater than or equal to (\>=)18 years
Identified by an enrolled participant (or their legally acceptable representative\*) as a primary caregiver
Caregiver has provided informed consent in accordance with local requirements
You may not be if
For Participant Selection:
\- Participant has received a treatment in an IRD-related interventional trial, or is being screened for an IRD-related interventional trial
For Caregiver Selection:
\- Caregiver has an IRD diagnosis and presents with symptoms (visual impairment)
