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Keep this study
Lead
University of Pittsburgh
With
Cystic Fibrosis Foundation
National Heart, Lung, and Blood Institute (NHLBI)
This co-funded study sponsored by the National Institutes of Health and the CF Foundation (CFF) will seek to determine the health impact of parenthood on people with CF in the era of CF transmembrane conductance regulator (CFTR) modulators. To provide relatively immediate evidence on parenthood's effect on pulmonary health and the influence of the introduction and use of all available CFTR modulators, in Aim 1 the study team will assess changes in pre- vs. intra-parenthood percent predicted forced expiratory volume in 1 second (ppFEV1) in a retrospective longitudinal cohort study linking CFF patient registry (CFFPR) data with cross-sectional surveys collected from 249 new parents attending participating United States CF centers between 2012-2022. The study team will identify predictors and timing of lung function loss using 747 non-parents from participating centers as a comparison group and examine the impact of CFTR modulators on parental health.
Age
18–any
Sex
ALL
Healthy volunteers
Not accepted
You may be eligible if
Confirmed CF diagnosis with sweat or genotype analysis
Participant in the CFFPR
Became a first-time parent between the years 2012-2022 (exposure arm only)
You may not be if
Lung transplant prior to becoming a first-time parent (exposure arm) or prior to study period (control)
Does not speak/read English or Spanish
Clareo Health | Health Outcomes of Parents With Cystic Fibrosis
