Enhancing Information Management for Young Adults After Genetic Cancer Risk Testing

You may be eligible if

• YA Patients:
• * Ages 18-39 years, inclusive.
• * Has had previous cancer genetic testing, with a finding of a pathogenic variant or VUS; patient has previously received results from the clinical team.
• * English-speaking and -reading.
• * Receiving care at DFCI.
• * Not undergoing active cancer therapy at the time of approach.
• Clinicians:
• * Cancer risk physicians (oncologists, gastroenterologists, geneticists), oncologists, nurse practitioners, physician assistants, or genetic counselors.
• * English-speaking and -reading.
• * Cares for YAs aged 18-39 with cancer risk syndromes.
• YA Patients:
• * Ages 18-39 years, inclusive.
• * Has had previous cancer genetic testing, with a finding of a pathogenic variant or VUS; patient has previously received results from the clinical team.
• * English-speaking and -reading.
• * Receiving care at Dana-Farber Cancer Institute.
• * Did not participate in a stakeholder interview (Aim 1).
• * Not undergoing active cancer therapy at the time of approach.
• Clinicians:
• * Oncologists, nurse practitioners, cancer risk physicians, or genetic counselors.
• * English-speaking and -reading.
• * Caring for a participating YA.