A Survey to Describe the Experience and Unmet Needs of Persons Living With Von Willebrand Disease (VWD) and Their Caregivers

Exclusion Criteria

• •Phase 1:
• •Participants or caregivers of participants who do not have severe symptoms of VWD
• •Pediatric participants (age \<18 years)
• •Participants who have not received any treatment (on-demand, regular or situational prophylaxis) within the last five years
• •Participants who are successfully treated with desmopressin or anti-fibrinolytic medications
• •Participants with inherited or acquired hemostatic or bleeding disorders other than congenital VWD (self-reported)
• •Participants and caregivers of participants who show cognitive impairment (as assessed by the research nurse at the time of screening)
• •Participants and caregivers who are qualified as health care practitioners currently working in a health-care capacity (e.g., physician, nurse, or healthcare aid)
• •Participants or caregivers who do not reside in Canada
• •Current or past participation within the last 12 months in a clinical trial
• •Phase 2: Same as above excluding participants of ≥18 years of age