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Developing a Down Syndrome Health Instrument

NCT04631237·1 site·ClinicalTrials.gov

What this study is about

Take this into the appointment.

Saves the questions and what to expect into your notes, next to the visit they belong to.

Keep this study

Lead

Massachusetts General Hospital

With

National Institutes of Health (NIH)

Age

18–any

Sex

ALL

Healthy volunteers

Not accepted

You may be eligible if

Primary caregiver of an individual with DS (individual with DS age: \<22 years)
Caregiver age: ≥18 years
Fluent in written and spoken English
Able to read and provide informed consent

You may not be if

Physical or mental condition of caregiver that would prohibit self-administration of questionnaire
Mosaic Down syndrome: based on medical record review. If caregiver is uncertain or mosaicism is unknown, we will request additional records.

The record

StatusCompleted

PhaseNo phase

Taking part758

StartedApr 2020

UpdatedApr 27, 2026

Conditions

Down Syndrome Health, Subjective

Where1

Massachusetts General Hospital
Boston, Massachusetts, United States

Clareo Health | Developing a Down Syndrome Health Instrument