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Active Not RecruitingNCT04036799

PRecIsion Medicine in CardiomyopathY

This is a retrospective cohort study of pediatric hypertrophic cardiomyopathy (HCM) patients using chart and registry review methodology. The studies objective is to develop and validate a sudden card...

Lead sponsor: The Hospital for Sick Children•View source on ClinicalTrials.gov

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Sponsors

Lead Sponsor

The Hospital for Sick Children

Collaborators

Stanford University
Children's Hospital of Philadelphia
New York Presbyterian Hospital
University of Texas Southwestern Medical Center
University of Michigan
Children's Hospital Medical Center, Cincinnati
Provincial Health Services Authority British Columbia
Stollery Children's Hospital
Children's Hospital of Eastern Ontario
Royal Children's Hospital
Children's Healthcare of Atlanta
Primary Children's Hospital
Baylor College of Medicine
The Cleveland Clinic
Monroe Carell Jr. Children's Hospital at Vanderbilt
Children's Hospital Colorado
Indiana University Health
OHSU Doernbecher Children's Hospital
Children's Hospital Los Angeles

Age

0 - 18 years

Sex

ALL

Healthy Volunteers

No

Inclusion Criteria

•phenotype-positive patients diagnosed with hypertrophic cardiomyopathy
•phenotype-negative, genotype positive patients considered at risk for developing hypertrophic cardiomyopathy

Exclusion Criteria

•Neuromuscular, metabolic, syndromic (other than Noonan Syndrome and related RAS-opathies) or endocrine (including infants of diabetic mothers) causes of HCM
•(Other treatable causes of left ventricular hypertrophy (systemic hypertension, anatomic defects causing left ventricular outflow tract obstruction e.g. aortic stenosis, subAS, subaortic membrane, coarctation)

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Data from ClinicalTrials.govLast updated on ClinicalTrials.gov: May 21, 2025Terms

Trial snapshot

StatusACTIVE_NOT_RECRUITING

Phase—

Enrollment572

Start dateJan 2017

Last updatedMay 21, 2025

Condition

Hypertrophic Cardiomyopathy Sudden Cardiac Death

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Data Source & Attribution

This clinical trial information is sourced from ClinicalTrials.gov, a service of the U.S. National Institutes of Health.

ClinicalTrials.gov last update: May 21, 2025Data synced to Clareo: May 25, 2026

Modifications: This data has been reformatted for display purposes. Eligibility criteria have been parsed into inclusion/exclusion sections. Location data has been geocoded to enable distance-based search. For the authoritative and most current information, please visit ClinicalTrials.gov.

Neither the United States Government nor Clareo Health make any warranties regarding the data. Check ClinicalTrials.gov frequently for updates.

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