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A Study to Identify the Supportive Care Needs of Caregivers of Patients With Erdheim-Chester Disease and Other Histiocytic Diseases
This study is being done to answer the following question: What are the supportive care needs of informal caregivers of people with Erdheim-Chester disease and other histiocytic diseases?
Age
18 - No limit years
Sex
ALL
Healthy Volunteers
Yes
Memorial Sloan Kettering Cancer Center
New York, New York, United States
Start Date
June 14, 2019
Primary Completion Date
June 1, 2026
Completion Date
June 1, 2026
Last Updated
September 11, 2025
250
ESTIMATED participants
online surveys
BEHAVIORAL
Lead Sponsor
Memorial Sloan Kettering Cancer Center
Data Source & Attribution
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