The Burden of Access in Duchenne Muscular Dystrophy in the US

You may be eligible if

• Patient/Parent interviews
• Patients residing in the US who have been diagnosed with DMD who are age 18 years or older, or the parent / legal guardian of a person of any age who has been diagnosed with DMD,
• Have provide "Proof of DMD" to ensure that they are impacted by the disease,
• Who have provided sufficient information in the RSVP process to determine their functional status; ambulatory, transitional or non-ambulatory,
• State that they are the person who deals with insurance issues for the affected patient and,
• Who are able to understand and consent to participation in the study
• Healthcare Provider survey
• Healthcare providers (physicians, nurse practitioners, and physician assistants) currently involved in the care of patients with DMD
• Are currently practicing in the US,
• Who have provided sufficient information in the survey screening to determine that they currently care for DMD patients,
• State that they and/or persons on their staff interface with insurance companies for DMD patients related to access to medications, services and/or medical equipment and,
• Who are able to understand and consent to participation in the study