Saves the questions and what to expect into your notes, next to the visit they belong to.
Keep this study
Lead
Thomas Jefferson University
This study addresses the unmet needs of female primary informal caregivers of youth with spinal cord injury. A one-group pre-post treatment design will be used. Consented caregivers will receive coaching via face-to-face or via the phone. Each caregiver will participate in up to 10 coaching sessions. Each coaching session will last up to 90 minutes. Coaching sessions will be audiorecorded and transcribed verbatim. Outcomes of coaching on caregivers' self-identified goals will be assessed using the Canadian Occupational Performance Measure.
Age
Any age
Sex
FEMALE
Healthy volunteers
Accepted
You may be eligible if
female primary caregiver of youth between 6-13 years of age with traumatic spinal cord injury
female primary caregivers have legal guardianship of their child with spinal cord injury
speak, read and comprehend English
be available for face-to-face coaching
have a cell phone with text messaging capabilities, and willing to utilize cell or land line for coaching and data collection
able to verbalize changes in their own participation or their child's participation during initial screen
written consent
You may not be if
severe mental health condition of female caregiver, as documented in child's medical record or reported to research staff by child's treating MD or medical team member
abuses illicit or prescribed substances or alcohol at time of initial screen as documented in child's medical record or reported to research staff by child's treating MD or medical team member
Clareo Health | Coaching for Caregivers of Children With Spinal Cord Injury