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UNKNOWNNCT03786263

CHILDNEPH The Canadian Childhood Nephrotic Syndrome Study

CHILDNEPH is a pan-Canadian project to observe clinical care for children with nephrotic syndrome. Previous studies have indicated that there is wide practice variation in how health care providers tr...

Lead sponsor: University of Calgary•12 locations•View source on ClinicalTrials.gov

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Contacts

Laurel Ryan, MFA

CONTACT

403-955-7160 laurel.ryan@ahs.ca

Maneka Perinpanayagam, PhD

CONTACT

403-955-2467 maneka.perinpanayagam@ahs.ca

Sponsors

Lead Sponsor

University of Calgary

CHILDNEPH is an ongoing prospective longitudinal study of children with incident and prevalent nephrotic syndrome. Children are recruited from 12 centres across Canada and followed for at least 30 months. The project starting in August of 2013 with the goal of following 400 patients. Data is collected at enrollment, beginning and end of each relapse, semi-annual visits and end of study. Detailed prescription data is collected regarding glucocorticoids and all second line agents. All relapses are recorded with time to urinary remission of proteinuria. The investigators are moving towards registry based trials to determine optimal treatment protocols for nephrotic syndrome with an overall goal to minimize glucocorticoid exposure, a patient priority.

Age

1 - 17 years

Sex

ALL

Healthy Volunteers

No

Inclusion Criteria

•Diagnosis with Nephrotic Sydrome at initial presentation, first or second relapse

Exclusion Criteria

•unable to participate in English or French
•Nephrotic Syndrome is secondary to other disease
•Younger than one year old or older than 17 years

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Data from ClinicalTrials.govLast updated on ClinicalTrials.gov: May 6, 2019Terms

Trial snapshot

StatusUNKNOWN

Phase—

Enrollment400

Start dateAug 2014

Last updatedMay 6, 2019

Condition

Nephrotic Syndrome in Children Nephrotic Syndrome, Minimal Change Nephrotic Syndrome，Idiopathic

Locations shown

Alberta Children's Hospital

Calgary, Alberta

Stollery Children's Hospital, University of Alberta

Edmonton, Alberta

British Columbia Children's Hospital

Vancouver, British Columbia

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Data Source & Attribution

This clinical trial information is sourced from ClinicalTrials.gov, a service of the U.S. National Institutes of Health.

ClinicalTrials.gov last update: May 6, 2019Data synced to Clareo: May 25, 2026

Modifications: This data has been reformatted for display purposes. Eligibility criteria have been parsed into inclusion/exclusion sections. Location data has been geocoded to enable distance-based search. For the authoritative and most current information, please visit ClinicalTrials.gov.

Neither the United States Government nor Clareo Health make any warranties regarding the data. Check ClinicalTrials.gov frequently for updates.

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