Sponsors

Lead Sponsor

Foundation for Prader-Willi Research

Collaborators

Prader-Willi Syndrome Association USA

The incidence and natural history of several PWS symptoms are poorly defined. In this text-messaging based study we will gather and analyze data on changes in body weight over a 6-month interval, in individuals aged 12 and over. We would like to learn about the normal weight variation in the PWS population. We anticipate that this study will inform future clinical trials for hyperphagia/obesity related therapies, and provide a basis for understanding how well potential therapies are working. For this study, there will be no intervention and the all data will be collected via texting.

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Active Not RecruitingNA

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COMPLETEDNA

Weight Change in PWS Over Six Months

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