Saves the questions and what to expect into your notes, next to the visit they belong to.
Keep this study
Lead
Boston Children's Hospital
With
New England Congenital Cardiology Association (NECCA)
Yale University
Dartmouth College
Connecticut Children's Medical Center
University of Vermont
Child Heart Associates
Congenital Heart
University of Massachusetts, Worcester
Massachusetts General Hospital
This is a multi-center prospective study that involves collecting data from patients as well as their cardiology providers in order to determine whether there is correlation between patient-reported quality of life assessments and clinician-identified assessments of their patients. The study also involves collecting data from the medical records of participating patients and entering it into our study database.
Age
10–60
Sex
ALL
Healthy volunteers
Not accepted
You may be eligible if
Extracardiac or Lateral Funnel Fontan
You may not be if
Currently being evaluated for or listed for cardiac transplant
Underwent Fontan revision or conversion
Currently pregnant
Clareo Health | Clinical Characteristics and Associations of the "Good Fontan" Patient
