Association de Recherche en Physiopathologie Respiratoire
With
GlaxoSmithKline
Soladis
Interlis
A 3-steps study protocol was initiated in 2011 to develop a patient reported outcome measure (PROM) in PAH.The first two steps have been completed (qualitative study and Delphi consensus study) leading to the development of a provisional 37-items questionnaire. A reduction of items in this provisional questionnaire and the validation of the final questionnaire are the goals of the current study.
Age
18–any
Sex
ALL
Healthy volunteers
Not accepted
You may be eligible if
patients with idiopathic and heritable PAH;
patients over 18;
male and female;
NYHA Functional Class I, II, III \& IV;
Written consent signed
Patients with a good understanding of the French - language
Patient affiliated with a social security scheme
You may not be if
Patients under 18 years of age
Patients with other pathologies associated with PAH (Group 1)
Patients with other forms of pulmonary hypertension (groups 2, 3, 4 and 5)
Non-consenting patients
Patients who do not have a good understanding of the French language
