Patients must be newly diagnosed with chronic thromboembolic pulmonary hypertension (CTEPH) (incident patients)

Patients must have been treated with anti-coagulation for at least 3 months before diagnosis of CTEPH

Patients must be willing to provide informed consent

Patients must meet the following criteria for CTEPH:

* Mean pulmonary artery pressure (PAP) ≥ 25 mmHg at rest

* Abnormal VQ scan, pulmonary angiogram, computed tomography (CT) pulmonary angiogram, or magnetic resonance (MR) pulmonary angiogram confirming chronic thromboembolic disease as recommended by standard guidelines

New International CTEPH Database

What this study is about