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Hypotonia and Neurofibromatosis Type 1 (NF1) Glioma

NCT02584413·1 site·ClinicalTrials.gov

What this study is about

Take this into the appointment.

Saves the questions and what to expect into your notes, next to the visit they belong to.

Keep this study

Lead

Washington University School of Medicine

With

St. Louis Children's Hospital

Age

1–7

Sex

ALL

Healthy volunteers

Not accepted

You may be eligible if

Patient must be seen at the St. Louis Children's Hospital NF Clinic
Diagnosis of NF1
Between 1 and 7 years of age, inclusive
Diagnosed with hypotonia
Legally authorized representative/guardian must be able to understand and willing to sign an IRB-approved informed consent document
Must have an MRI scan ordered by a treating physician

You may not be if

Normal tone on clinical exam
Known allergy to gadolinium or the sedative, propofol, used during MRI
Poor kidney function defined as a known renal disease or elevated BUN and creatine
Requiring intubation for anesthesia

The record

StatusTerminated

PhaseNo phase

Taking part29

StartedApr 2013

UpdatedSep 3, 2019

Conditions

Neurofibromatosis Type 1

Where1

Washington University School of Medicine (St. Louis Children's Hospital)
St Louis, Missouri, United States

Clareo Health | Hypotonia and Neurofibromatosis Type 1 (NF1) Glioma