Prospective Cohort Follow-up of French Patients With Profound and Multiple Disabilities: Healthcare Pathways and Quality of Life Among Patients and Their Families

Inclusion Criteria

• •age \> 3 years old,
• •patient with health insurance,
• •causal brain injury before the age of 3,
• •Intellectual Quotient \< 40 or not assessable,
• •motor disability: paraparesis, tetraparesis, hemiparesis, ataxia, neuromuscular disorders, or extrapyramidal motor disorders,
• •score at the Gross Motor Function Classification System \> 3,
• •score at the Functional Independence Measure \< 55.