Saves the questions and what to expect into your notes, next to the visit they belong to.
Keep this study
Lead
French Cardiology Society
Age
0–any
Sex
ALL
Healthy volunteers
Not accepted
You may be eligible if
The patient has a congenital heart disease other than patent foramen ovale
The diagnosis of pulmonary hypertension was confirmed by cardiac catheterization. Only patients with Eisenmenger syndrome can be included without catheterization.
The catheterization was done after 1 January 2009
A mean pulmonary artery pressure \> 25 mm Hg
Pulmonary vascular resistances \> 3 piece Wood m2
Pulmonary capillary pressure available
Consent for inclusion in the study must be signed by parents or legal guardians for minors, by the patient for adults.
The patient he had a surgical procedure or interventional catheterization cardiac catheterization between his diagnosis and inclusion in the observatory? If yes, it can only be included if a new catheterization confirmed the persistence of HTAP at least 6 months after the procedure.
Patient follow-up (at least once a year) in the center for its HTAP associated with congenital heart disease its
Clareo Health | Observatory of Pulmonary Arterial Hypertension of Congenital Heart Disease