Saves the questions and what to expect into your notes, next to the visit they belong to.
Keep this study
Lead
Children's Hospital Medical Center, Cincinnati
The purpose of the study is to develop patient-provider clinical support tools to improve clinical practice, patient self-management, and disease outcomes in sickle cell disease during transition to adult care.
Age
13–24
Sex
ALL
Healthy volunteers
Not accepted
You may be eligible if
Have sickle cell disease (SCD)
Between the ages of 13 and 24
Receive care at Cincinnati Children's Hospital Medical Center, University Hospital, University of Cincinnati Med Peds Practice, a practice in the Ohio Valley SCD Network, or another local provider
Parent/caregiver of a patient with SCD age 13-24 years
You may not be if
Below age 13
Have significant health complication(s) that would interfere with completion of the intervention (by physician report)
Have significant cognitive or developmental disabilities (by parent or physician report) due to high demand on participants to understand questions
Are not a patient at Cincinnati Children's Hospital Medical Center, University Hospital, University of Cincinnati Med Peds Practice, a practice in the Ohio Valley SCD Network, or another local provider
Are not a parent/caregiver of a patient with SCD age 13-24 years
Clareo Health | Patient-Provider Tools to Improve the Transition to Adult Care in Sickle Cell Disease
