Survey Evaluating the Psychosocial Effects of Living With Haemophilia

Inclusion Criteria

• •Males with haemophilia A or B (with or without inhibitors)
• •Parents/carers of children aged below 18 years with haemophilia A or B (with or without inhibitors)
• •Patients currently receiving treatment for haemophilia with one of the following: replacement factor VIII or replacement factor IX or a bypassing agent (recombinant factor VIIa or aPCC (Activated prothrombin complex concentrate))
• •Patients with haemophilia, not currently receiving treatment with replacement factor VIII or IX or a bypassing agent (as appropriate), but who have had at least one spontaneous bleed into one or more joints within the last 12 months
• •Subjects must have access to the internet, either at home or at a location convenient to them, be able to complete a paper questionnaire, or be available to attend a face-to-face interview (Algerian subjects only), to participate in the survey