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Impact of Motor and Oral Motor Function on Quality of Life in Children With Type I Spinal Muscular Atrophy
The aim of this study is to investigate the impact of motor and oral motor functions on the quality of life in children aged 2-4 years diagnosed with Spinal Muscular Atrophy (SMA) Type I. In the study, the Neuro-Sensory-Motor Developmental Assessment (NSMDA) was used to evaluate motor functions, the Functional Oral Intake Scale (FOIS) to assess oral motor function, the Behavioral Pediatric Feeding Assessment Scale (BPFAS) to evaluate children's attitudes towards feeding, and the Pediatric Quality of Life Inventory (PedsQL) Neuromuscular Module to assess quality of life.
Age
2 - 4 years
Sex
ALL
Healthy Volunteers
No
Biruni University
Istanbul, Turkey (Türkiye)
Start Date
May 30, 2024
Primary Completion Date
June 15, 2024
Completion Date
August 30, 2024
Last Updated
March 7, 2025
23
ACTUAL participants
Neuro-sensory Motor Developmental Assessment
OTHER
Functional Oral Intake Scale
OTHER
Behavioral Pediatrics Feeding Assessment Scale
OTHER
Pediatric Quality of Life Inventory
OTHER
Lead Sponsor
Zeynep HOŞBAY
Data Source & Attribution
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