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AYANDRA Study: Addressing Youth and Adolescent Needs in Development, Research, and Advocacy
The study aims to describe unmet needs of Adolescent \& Young Adults (AYA) with gastrointestinal and breast cancers in relation to: a) quality of life, b) education, c) finances and Insurance, and d) childbearing and parenting in Europe
An electronic online questionnaire was developed addressing four main areas: a) quality of life, b) education, c) finances and Insurance, and d) childbearing and parenting. In brief, the first part of the questionnaire will aim to examine the demographic characteristics of the participants, such as their nationality, gender, age at diagnosis, actual age, and level of education, followed by their diagnosis or condition. No clinical data will be collected other than these features. Then, each domain will include 10 questions (multiple choice questions, ranking questions and 7-point Likert scale questions) and investigate the unmet needs in AYA with gastrointestinal and breast cancers.
Age
18 - No limit years
Sex
ALL
Healthy Volunteers
No
Fondazione Policlinico Universitario A. Gemelli IRCCS, UOC Chirurgia Generale 1
Roma, Italy
Start Date
June 1, 2025
Primary Completion Date
December 1, 2025
Completion Date
June 1, 2026
Last Updated
September 19, 2024
580
ESTIMATED participants
Lead Sponsor
Fondazione Policlinico Universitario Agostino Gemelli IRCCS
Data Source & Attribution
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